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Children's Hospital (RSS)
Today has been a very busy day for both Emma and myself, so we are pretty tired. In an effort to get some much needed rest, I'm going to keep this post short. As many of you saw on Twitter today, Emma's infection has returned. Yesterday's blood culture
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Sorry for taking a few days off of the blog. I needed a few days to catch up on paperwork and sleep. As you can imagine, this whole process has been draining. Our little girl is doing much much better, but it will still be a long road til she's out of
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Last night was a long night for Miss Emma. The doctors removed the ECMO machine and replaced it with the CRRT machine you see above, however Emma didn't like the switch. Her blood pressure dropped really low and was unstable. The doctors decided to remove
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I say this without any hyperbole when I announce that this has been the happiest morning of my life. Sure, I was happy beyond words when the girls were born , and my wedding kinda put me over the top too. However seeing Emma alive, awake and responsive
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For those of you waiting for some huge climax to Emma's story, I have some bad news for ya. The ending will continue to be a long drawn out process. There are no clean, quick wins here. As we all know, Emma is one tough girl. The docs had to back off
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No real news on Emma so far today. She is basically the same. The last blood culture grew positive in 20 hours, which is up from 12 hours, so that is a good sign. Doesn't really mean much, but we are taking every bit of good news that we can get. The
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I just left the hospital to spend a few moments dealing. Actually, I left the hospital an hour and half ago and went for a very long walk in the rain.Very cathartic. Very necessary. Long walks surrounded by unadulterated nature provide time to reflect
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I'm sure most of you are wondering about my last post. Well, the infection in Emma has gotten worse. The doctors called us tonight at home with some amazingly bad news. The infection has prevented Emma from removing excess fluid. Her kidneys stopped functioning,
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First let's start with Emma. We have some bad news on that front. She has caught an infection and is now on a bunch of antibiotics which will unfortunately push her recovery back significantly. She has a mild fever but is starting to get over it slowly.
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Curious as to all the drugs that Emma is currently on? Well, I took an inventory the other day and here's the list so far: Calcium Chloride Milrinone Amiodarone Heparin Morphine Lorazepam Potassium Chloride Furosemide Lasix Ativan Diamox Nitric Oxide
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I'm not on drugs, but Emma sure is. Today, at around 10 am, Emma decided that she wanted to play speed racer with her heart. Now, we were warned that there might be some hiccups along the road to recovery so we were prepared for weird things to happen.
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Playapixie outlines everything, and I mean everything in Emma's new digs. Click on the photo above to learn about her new equipment. Then check out this photo to see what all the wires and tubes are for. ....and when you are done reviewing that, take
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Whatever you all did to help support Emma, it worked. Thank you so much, we sincerely thank you all. She's in the CICU now recovering from her surgery. You can see more photos of her up on Flickr. We are expecting her appearance to worsen over the next
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We just met with Dr. Lester Permut who performed the surgery. He gave us the following details on the operation. The hole in heart was very large, but also hard to reach. There was no question we did the right thing by repairing it now. Because the hole
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For those of you who may have missed the updates on Twitter , Emma is out of the OR. Her surgery is complete. The doctors informed us that hypothermic circulatory arrest (where they freeze the body) was not needed for the VSD repair. The hole was successfully
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