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Matt's personal happenings about life and whatnot.

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Cute Pic of the day, part deux
Great quote from Amani... "She's huge and darling. " Share this post: email it! | Send to Delicious | digg it! | reddit! | Dot it! | Seed Newsvine Read More...

by mattk | 1 Comments

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Swing Life Away
When I signed the girls up for Microsoft benefits at the end of last year, I was offered the chance to get child life insurance. I was leaning against it until I saw it was only a couple of bucks a month. Given that I wouldn't even notice the change in Read More...

by Ellen | 2 Comments

The answer is near
I haven't blogged for a couple of days for various reasons. The biggest reason is that Mother's day was kinda hard on everyone. Sure, we were with friends, but it didn't help that Emma wasn't physically here for Ellen's first Mother's Day. It was really Read More...

by mattk | 0 Comments

Gallup'ing along
Don't forget you can follow our progress using this Google Map I put together! As is common with most trips, we've discovered that there's really too much to do in the Southwest for one trip. Today, we headed north from Mesa, AZ, to Montezuma Castle National Read More...

by mattk | 0 Comments

First night on the desert
If you can't see this video, click here . Last evening we drove through the first part of what will be a multi-day adventure through the desert. The mountains were spectacular. We were going to stop in Indio, CA for the night but fortunately, they were Read More...

by mattk | 0 Comments

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Moving Quick
We are making quick progress down the coast. Something told us that our trip wouldn't really start until we got to LA to watch the sunset. Thus we've decided to forgo any side trips and head straight to Santa Monica to visit one of my good friends . Tonight Read More...

by mattk | 0 Comments

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We're off!
Our road trip started today, with our very first stop at a funeral home in Ballard to pick up Emma. You can follow along via this special map that I'm updating as we travel. Both Ellen and I separately had a feeling that this was to be our official first Read More...

by mattk | 0 Comments

Emma's Memorial Service at CHAC
I know I haven't blogged in a while, but we are still trying to get our lives back to normal. Finally, we are coming up for air and have some really interesting posts regarding Emma, Ella and the rest of us. Who knows, I may even add some tech posts as Read More...

by mattk | 0 Comments

Goodbye Emma
It is with a heavy but peaceful heart that I want to let you know that Emma is finally comfortable and happy. She passed on this afternoon without pain in her parent’s arms, with the sun shining and the wind blowing through the trees. Emma was an inspiration Read More...

by Ellen | 8 Comments

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quick updates
First let's start with Emma. We have some bad news on that front. She has caught an infection and is now on a bunch of antibiotics which will unfortunately push her recovery back significantly. She has a mild fever but is starting to get over it slowly. Read More...

by mattk | 0 Comments

Drugs are the cure for hiccups
I'm not on drugs, but Emma sure is. Today, at around 10 am, Emma decided that she wanted to play speed racer with her heart. Now, we were warned that there might be some hiccups along the road to recovery so we were prepared for weird things to happen. Read More...

by mattk | 0 Comments

Grossly Unremarkable
It's been a crazy couple of days, and it ends with a few morsels of good news. I mentioned in the last post that Ella has a few spots on her liver. 2 days ago we took her in for a CT scan of her abdomen so the doctors could get an enhanced view of her Read More...

by mattk | 0 Comments

We are punching bags
Ellen and I are ready for some good news, unfortunately others must feel we haven't suffered enough. Today we took Ella in for an ultrasound of her abdomen to see if she exhibited any more symptoms of beckwith-wiedemann syndrome. I figured this whole Read More...

by mattk | 0 Comments

I heart you
It's been a while since I updated you, so I figured I'd put Ella down for a sec and give you all the latest news. Emma is currently in a holding pattern over at Children's Hospital. After being moved 5 different times within the facility, I think we finally Read More...

by mattk | 0 Comments

Separated at birth?
Of course they were separated at birth. That's Ella and her mom (circa 1975) both enjoying tummy time. The funny thing about these photos is that Ella is a such a mashup of Ellen and myself. She has Ellen's chin and my fat face (and eyes). Ellen had an Read More...

by mattk | 0 Comments

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