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Last night was a long night for Miss Emma. The doctors removed the ECMO machine and replaced it with the CRRT machine you see above, however Emma didn't like the switch. Her blood pressure dropped really low and was unstable. The doctors decided to remove...
Whatever you all did to help support Emma, it worked. Thank you so much, we sincerely thank you all. She's in the CICU now recovering from her surgery. You can see more photos of her up on Flickr. We are expecting her appearance to worsen over the next...
We just met with Dr. Lester Permut who performed the surgery. He gave us the following details on the operation. The hole in heart was very large, but also hard to reach. There was no question we did the right thing by repairing it now. Because the hole...
For those of you who may have missed the updates on Twitter , Emma is out of the OR. Her surgery is complete. The doctors informed us that hypothermic circulatory arrest (where they freeze the body) was not needed for the VSD repair. The hole was successfully...
Tomorrow is the big day. We have one last hurdle in this very long journey, and I'd be lying if I told you we weren't all a little scared. Repairing a ventricular septal defect is a common procedure, but it is by no means simple. It will require the doctors...
Well, I spent last night agonizing over what was the best decision for Emma. Really, I spent many hours trying to convince myself that we needed to proceed with surgery on Monday even though I knew in my gut that it was the wrong thing to do. We couldn...
Of course they were separated at birth. That's Ella and her mom (circa 1975) both enjoying tummy time. The funny thing about these photos is that Ella is a such a mashup of Ellen and myself. She has Ellen's chin and my fat face (and eyes). Ellen had an...
Sorry I've taken so long to write a post, but things are progressing here in a good hurry. Emma is scheduled to move to Children's Hospital tomorrow morning at 9am. Woo-Hoo! She's going to spend a couple days in observation to determine how soon they...
It is natural for geeks to consume data. We live for that. Give us more data and then we can make informed decisions. Well, our family is full of geeks and thus we love data. We spent this morning at Children's Hospital meeting with Dr. Mark Lewin , Chief...
The kids have been very slowly making progress. Ella hit a couple major milestones today. She officially weighs over 4 pounds now, and she is actually starting to become chubby. That's a great thing! Ella also initiated breast feeding directly from Ellen...
Supposedly, this is what kangaroos do. I didn't feel much like a kangaroo, but I was definitely a marsupial of some sort. Emma got her first chance at being held today, and I was the lucky one who got the first opportunity to hold her. It was another...
Instead of the Wicked Twister , we've now moved to the Gemini . Same thrill, different ride. Though, thrill is probably not the word I would use to describe the crap we are going thru. Let's talk about the peaks of the rides before we get to the valley...